I was in London all day and Lucy went to give a skipping lesson in the evening. Received a call from one of the nurses to say that Juliet had had a fit about 5:30 pm and had been sleeping soundly since then, so much so they couldn’t get her to take her regular afternoon medication (ironically part of the anti-fit treatment). Alice & I picked Lucy up from Kidlington at 8pm and went straight to KH. The nurses were just transferring J from her chair to the bed which took a while. When we went in, she was deeply asleep, tucked up in bed. She did manage to open her eyes a few times, say “yes” to something and smile, and even took a few sips of water from a beaker. However she didn’t return our squeezing of her fingers; she was almost unconscious. So we didn’t stay long, to let her sleep.
The doctors had explained to me a while back that the fits are actually brief, mild seizures – shaking of the limbs and sometimes loss of consciousness for a few moments and loss of bladder control. These are extremely tiring and the body’s reaction is to go to sleep. Before J entered the hospice she’d had several weeks of seizures and deep, deep long sleeps, until the doctors got her medication programme worked out. So let’s hope she wakes up bright & refreshed tomorrow.
It seems that her cousin Janet (either her second cousin or first cousin once removed, her godmother anyway) had visited today, as evidenced by posh chocs being left and which J had started to work through in best Billy Bunter fashion.
Thinking about the presence of a water beaker tonight, I’d noticed that yesterday, instead of the usual water glass. They are practical things, but they’re also indicators of the extra care she needs day by day.
I’m going to close with a nice picture of J in happier times. Not going to save them all up for after she’s gone.